Our partners

Patient Safety Learning Charity.

Patient Safety Learning is a charity and independent voice for improving patient safety. We harness the knowledge, insights, enthusiasm and commitment of health and social care organisations, professionals and patients for system-wide change. Patient Safety Learning’s the hub is a platform for patient safety. It offers a powerful combination of tools, resources, stories, ideas, case studies and good practice to anyone who wants to make care safer for patients. Membership is free – you can register at www.pslhub.org We have been actively promoting longcovid as a patient safety issue, calling for recognition, diagnosis, treatment and support.

https://www.patientsafetylearning.org/

ME Association

The ME Association supports people with ME/CFS through all stages of their illness.

We provide information, support and practical advice for people, families and carers affected by M.E. (Myalgic Encephalopathy), Chronic Fatigue Syndrome (CFS) and Post Viral Fatigue Syndrome (PVFS). We also fund and support research, and offer education and training.

At the ME Association, we believe it is high time the world at large realises that this disease can affect anyone – any age, any ethnicity – and can occur at any time of life.

People with M.E. are demonstrating they possess the confidence to be seen and are raising more awareness than ever before! It’s not too late.

We represent people with ME/CFS by attending Parliamentary Meetings where we inform MPs and question Government Ministers and their advisers. We work with Health Authorities and medical professionals – leading specialists, GPs and nurses – informing them and learning from them about the illness and question what is being done to provide assistance to patients.

https://meassociation.org.uk/

ME research UK

Myalgic encephalomyelitis (ME) is characterised by a range of neurological symptoms and signs, muscle pain with intense physical or mental exhaustion, relapses, and specific cognitive disabilities. Early reports dating from 1934 described epidemics of the illness – such as the 1955 outbreak at the Royal Free Hospital in London – but nowadays it is more common for endemic (sporadic) cases to be identified.

The principal aim of ME Research UK is to commission and fund high-quality scientific (biomedical) investigation into the causes, consequences and treatment of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (also known as ME/CFS). This is a debilitating illness which affects between 120,000 and 240,000 people in the UK, but is neither well understood nor, in many cases, properly recognised.

We also have a mission to Energise ME Research, which involves raising awareness of the need for biomedical research into ME/CFS globally, and providing high quality information on all aspects of the illness for a wide range of audiences – from summarising and appraising scientific literature on ME/CFS to informing the policy agenda.

https://www.meresearch.org.uk/what-is-me/?gclid=Cj0KCQjwit_8BRCoARIsAIx3Rj6272HjvFLwGQ262KQZYO76n9yrGFgpL1a_czziqR8yUGHnCGVnn6MaAn07EALw_wcB